Head of Communications, Duchenne UK – Molly Hunt:
“In the past five years Duchenne UK has raised over £10 million and 90 percent of that is spent directly on research into Duchenne Muscular Dystrophy DMD. To do that we have to stay lean and keep our overheads low, so we have a small team and pick our partners carefully. We like to work with organisations which have the same kind of ethos as us and Virgin Money Giving definitely shares our ideals.
We have seen the way people raise money change enormously in recent years, it is all done digitally now and it’s great to have Virgin Money Giving keeping up with the pace of change for us.
The recent improvements to the system are already having a positive impact – it just seems much easier for fundraisers to set up a page now. We don’t need to give any instructions to people. We just say, ‘Go to the website, click “start fundraising” and off you go’. The fact that the system is now more user-friendly means that our resources can be put elsewhere and with a small team that time is essential. Things like Virgin Money Giving doing all the Gift Aid admin for us is so useful – it means that we don’t have to pay someone to do that admin for us.
The new social integration is also having an impact. There’s a very active Duchenne community on Facebook. As it is a rare disease, when people are diagnosed it is unlikely they will have heard of DMD before, or know anyone who lives nearby with DMD, so Facebook is really useful to share information to support each other and to raise money.
We definitely feel that Virgin Money Giving is on our side and the fact they are not-for-profit backs that up. Like us, they want to put as much money as possible back into doing good, which is really important for us because that’s how we’re going to change things in the long run.”
About Duchenne UK
Duchenne UK was formed in 2016 when Joining Jack and the Duchenne Children’s Trust, two of the UK’s biggest charity funders of research, joined forces. It is a highly focused, ambitious charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne Muscular Dystrophy (DMD).
DMD is a devastating muscle wasting disease and is the most common genetic killer of children worldwide. There is no treatment or cure. Children will be totally paralysed by their teens and won’t live beyond their 20s. But thanks to recent breakthroughs, Duchenne UK believes they can be saved.